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 Post subject: Re: Long Covid.
 Post Posted: Tue Apr 06, 2021 9:42 pm 
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Long Covid: More than a million affected in February, survey suggests
https://www.bbc.co.uk/news/health-56601911


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 Post subject: Re: Long Covid.
 Post Posted: Tue Apr 06, 2021 10:48 pm 
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The point of my posts today is that while i appear to have got lucky, potentially as one of the 20% who the vaccine apparently clears the body of Long Covid.

Not all will be so lucky and Long Covid as a by-product of infection is not going to go away any time soon.

The numbers of people who suffer with Long Covid are going to be vast no matter where any of us lives, and we need to adjust to that fact.

Every case of Covid-19 infection runs the risk of a 10% chance the disease will haunt them for months, if not years.

Help for those suffering from Long Covid is still as far away as it was for me back in August 2020.

If i could articulate that any better i would, suffice that when Covid-19 first became a pandemic we were scared of dying so we did what we were told, let me be clear, there is still an ongoing threat that no-one should want to experience... Long Covid, for me it was a nightmare that i never want to live through again... it was so horrendous that i still can't get to grips that the vaccine has actually cleared it from my body, i still live live day to day expecting to have some sort of relapse back into symptoms of Long Covid, but as each day passes my hope and realisation grows that i am done with this disease.

For those that don't know and are yet to experience this... i almost never cry but this disease reduced me to tears, i would sleep 18 hours a day and go to bed wondering if i would ever wake up again... i lost the ability to communicate with any other human being... i had body pains in places that simply didn't make sense... i had hallucinations that at times were terrifying... the exhaustion, fatigue and insomnia were on a level that i still struggle to understand how that ever happened.

Put simply, the number of symptoms i've suffered from has been over 50 and they were all cyclical, in the early days of my infection Long Covid simply didn't exist and i had no idea whether i would wake up the next day, so yes, i cried when i went to bed because i was terrified i might not wake up the next day.


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 Post subject: Re: Long Covid.
 Post Posted: Wed Apr 07, 2021 10:39 am 
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The bottom line is, of course, that this virus is horrible and that everyone should take every precaution to prevent getting infected. Increased vaccine distribution worldwide is a must, as is continued adherence to face coverings, hand washing, maintaining safe distances in public, etc.
I'm very glad that you appear to be in the 20% lucky group, but I'm not sure that I'd say "lucky" with more than a year of suffering!

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 Post subject: Re: Long Covid.
 Post Posted: Thu Apr 08, 2021 3:14 pm 
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sboots wrote:
I'm very glad that you appear to be in the 20% lucky group, but I'm not sure that I'd say "lucky" with more than a year of suffering!

I fully understand your point but given that i was also facing an 80% chance that the vaccine would make no difference at all for me, add that i survived through some really horrendous times when noone understood what was happening to me... e.g. the guesswork and wild misdiagnosing that was happening by the medical profession this time last year... even through all of that, i do think i got lucky when i got my shot :whew:


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 Post subject: Re: Long Covid.
 Post Posted: Thu Apr 08, 2021 4:07 pm 
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sboots wrote:
The bottom line is, of course, that this virus is horrible and that everyone should take every precaution to prevent getting infected. Increased vaccine distribution worldwide is a must, as is continued adherence to face coverings, hand washing, maintaining safe distances in public, etc.


For whatever reason there are whole sections of society around the world who simply cannot understand your point, Steve.

I don't get why they feel so safe, presumably you don't either, the fact remains no-one is safe until we are all safe.

The new variants are targetting ever younger age groups, presumably because the older age groups the virus targetted have been eliminated already (via death, or vaccine?).

In any case, until we are all vaccinated and the spread is stopped i cannot see an end to this because new variants will surface and only time will tell what they can do if we don't stop it in it's tracks.

Covid-19 being a "horrible" virus i suspect will haunt us all for a very long time, it is more than that, it is "Evil" in my opinion and it is multifaceted, to believe otherwise will haunt us for generations.


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 Post subject: Re: Long Covid.
 Post Posted: Thu Apr 08, 2021 5:27 pm 
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Quote:
I know how lonely and scary it is when you are fighting to be believed. You are literally on your own.

I so wish i'd come up with that quote myself months ago:

Source: 'Long Covid has destroyed me but I am fighting back'
https://www.bbc.co.uk/news/uk-england-beds-bucks-herts-56602894

I didn't, we have moved on since those days, there is no excuse for anyone not to know the consquences of their actions today.

Suffice: Act with impunity and you will pay a price.


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 Post subject: Re: Long Covid.
 Post Posted: Thu Apr 08, 2021 5:33 pm 
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Another case of hope:

North-east man’s hope end of long Covid battle is close
https://www.eveningexpress.co.uk/fp/news/local/north-east-man-long-covid/

Quote:
A north-east man who has suffered from long Covid for more than a year has revealed he is “better than the best he has been” after receiving his vaccine.


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 Post subject: Re: Long Covid.
 Post Posted: Thu Apr 08, 2021 9:19 pm 
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Doddie wrote:
For whatever reason there are whole sections of society around the world who simply cannot understand your point, Steve.

I don't get why they feel so safe, presumably you don't either, the fact remains no-one is safe until we are all safe.


Yes, I'm astounded at the sheer ignorance of people more than a year into this virus.

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 Post subject: Re: Long Covid.
 Post Posted: Thu Apr 08, 2021 9:34 pm 
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sboots wrote:
Doddie wrote:
For whatever reason there are whole sections of society around the world who simply cannot understand your point, Steve.

I don't get why they feel so safe, presumably you don't either, the fact remains no-one is safe until we are all safe.


Yes, I'm astounded at the sheer ignorance of people more than a year into this virus.

Is it being ignorant or actually brainwashed? Media is too big of a factor and too many actually believe what they see through the media without question. The media depends on advertisers for their money. If places are closed, or only operating partially, not as much money is available for advertising. In many cases the media is corrupting the science to make their money.

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 Post subject: Re: Long Covid.
 Post Posted: Thu Apr 08, 2021 11:34 pm 
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Ignorant, plain and simple. Brainwashed by certain media and politicians is not an excuse. In fact, those getting their information from these sources highlights their ignorance.

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 Post subject: Re: Long Covid.
 Post Posted: Fri Apr 09, 2021 5:04 pm 
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I'm firmly in the same camp as Steve, it is ignorance.

The mainstream media outlets have been so slow to pick up and report on Long Covid (aka Long Haul Covid in the US) it is bordeline obscene for any of the mainstream media outlets to now claim to be a News outlet.

As far back as late Sept/early Oct last year i was highlighting here what medical professionals around the world were reporting, that something unique was happening, those health professionals labelled it "Long Covid" in the UK, and "Long Haul Covid" in the US.

The healthcare professionals were the first to understand that something was not right simply because they had first hand medical knowledge to know and understand there was something happening to them that didn't make sense, and so they were able to articulate that in ways that people like me simply could not.

Niche forums sprang up all over the internet where healthcare professionals descibed what they were living with, nurses, doctors, consultants, professors, hospital porters, care home workers.... the list was seemingly endless... but they all described the same sypmtoms over and over again yet the "media" ignored them.

At around that time the so called "Social Media" began to sit up and take notice, lies and mis-information began to grow, others latched onto that and a whole new worldwide movement of lies and mis-information was born... yet the 'mainstream' media remained silent.

Can people be brainwashed, absolutely they can but this is not brainwashing.

The truth has, is, and always was out there... to not even attempt too look for the truth when it is available and in front of your face (here, or elsewhere) is ignorance of the highest level.

Should anyone chose to go with the crowd and not question what they are reading then that must surely be the epitome of ignorance.


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 Post subject: Re: Long Covid.
 Post Posted: Fri Apr 09, 2021 6:43 pm 
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OK, mayhaps I stated wrongly as ignorance can be cured, stupidity cannot. Too many people have gone to the point that they do a search on something and then figure that the top couple of results are probably the best which, as often as not, is not the case. The top results are actually usually those that pay for the results, in no way does this make them accurate.

The problem as I see it is that too many have been brought up in a world where the media, including Internet, is given too much weight. People think that they are doing due diligence just by looking and assume that the results will be accurate which too often is just not the case.

I believe that there should be censorship on the net... before you yell at me let me explain. Yes, at least in the U,S. such censorship could be seen as an infringement on the first amendment but I don't see it that way. The right of free speech is only valid as long as it does not infringe on the rights of others. Posting false information, in my opinion, does infringe on the rights of others especially when associated with major media. Yes, the media has the right to say what they want but there needs to be a stated difference as to whether the information is fact or opinion. Call me way to idealistic but I strongly believe that any media stating something as fact should have to include "foot notes" stating the source of the facts.

Yes, a lot of the population believes things that they should not just due to it's being posted by CNN, Fox or whatever but who is really at fault? I'm 66 years old and say that the fault is me; mayhaps not personally but my generation. We are largely responsible as to how younger people look at available information. It is my generation that is largely responsible for the fact that parents and teachers are much too restricted as how they can discipline a child. I'm not talking about abuse but just punishment associated to action. In today's world you could potentially lose your child for smacking on the butt in a store. This teaches the child that they don't need to follow what the parent says but just need to make a scene.

So now we have a generation with limited discipline and don't have the guts to admit that we are the cause. We gripe about what is wrong with today's youth but the simple fact is that WE are the cause.

Sorry but this is a strong topic with me... If parents and/or teachers are not allowed to discipline a child how can we expect a child to have discipline? Without discipline how can we expect the younger members of our society to react to things in a responsible manner.

Sorry for the rant but this is a REALLY sore spot with me. We complain at to what is but just don't have the guts to admit that we are actually the cause...

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 Post subject: Re: Long Covid.
 Post Posted: Fri Apr 09, 2021 8:06 pm 
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I actually agree with you, Jay.

I argued until i was blue in the face back in the 80's that children should be restricted to a walled garden for educational purposes on the internet, but of course no one listened to me so fast forward and we are where we are.

Like you, i could rant about this all night but best i don't go there.


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 Post subject: Re: Long Covid.
 Post Posted: Sat Apr 10, 2021 2:22 pm 
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I'm another that agrees with your rant Jay, the problem these days is there are too many too gooders around.

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 Post subject: Re: Long Covid.
 Post Posted: Sat Apr 10, 2021 3:51 pm 
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I could not agree more....

Publish figures on long Covid to show ‘untold suffering’, MPs urge

Cross-party group urge PM to give greater priority to potential harm posed by post-viral condition


Quote:
The number of people suffering with long Covid should be published routinely, as happens with those infected with or hospitalised with coronavirus, MPs and peers are urging Boris Johnson.

The cross-party group of parliamentarians want the prime minister to ensure that the “untold human suffering” that the condition involves helps shape future government policy towards the pandemic.

Thirty-two MPs and 33 peers have signed a letter urging Johnson to give greater priority to the potential harm posed by long Covid following the Office for National Statistics’ finding last week that an estimated 1.1m people are suffering its effects – far more than previously thought...

https://www.theguardian.com/society/2021/apr/09/publish-figures-on-long-covid-to-show-untold-suffering-mps-urge


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 Post subject: Re: Long Covid.
 Post Posted: Sun Apr 11, 2021 7:46 pm 
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When i read articles like this i still cry:

For many sufferers of long Covid, proving they are sick is a big part of the battle
https://edition.cnn.com/2021/04/11/health/coronavirus-long-covid-intl/index.html

It is the ignorance that hurts the most, i've lived with Long Covid for over 8 months so probably know more than most... it was my ignorance for what was about to happen to me that hurts the most when i look back at those dark days.

When anyone is ill again i will never see their suffering in the same light again.

I do not have the words to express how much Covid has changed my attitude to life.


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 Post subject: Re: Long Covid.
 Post Posted: Tue Apr 13, 2021 7:28 pm 
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I found this an interesting Q&A discussion, it's in print form, with no video that i could find.

How scientists are teasing apart the biology of Long COVID
By Jennifer Couzin-FrankelApr. 13, 2021 , 12:50 PM
https://www.sciencemag.org/news/2021/04/how-scientists-are-teasing-apart-biology-long-covid

Quote:
Science’s COVID-19 reporting is supported by the Heising-Simons Foundation.

After the first surge of COVID-19 cases in spring 2020, a new worry emerged: Some people didn’t get better. For those with so-called Long COVID, lingering symptoms ranged from brain fog and intense fatigue to shortness of breath and loss of smell and taste. So far, there’s little clarity about what causes or how to treat this constellation of symptoms. Some surveys suggest between 10% and 30% of people infected with the pandemic coronavirus may struggle to recover, but these data are preliminary.

Emilia Liana Falcone, an infectious disease specialist at the Montreal Clinical Research Institute, and Michael Sneller, an infectious disease specialist at the National Institute of Allergy and Infectious Diseases (NIAID), are each leading a large Long COVID clinical trial. They are recruiting volunteers who’ve had COVID-19—some with ongoing symptoms and some without—along with a control group of people who never caught the virus. Volunteers come in regularly for medical tests, and scientists probe their blood for immune abnormalities. The goal: a biological explanation of chronic symptoms after COVID-19. The pair spoke with Science about their work, their thoughts on Long COVID, and their efforts to let the data guide them. This conversation has been edited for brevity and clarity.


The article contines with the Q&A...


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 Post subject: Re: Long Covid.
 Post Posted: Wed Apr 14, 2021 9:21 pm 
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A couple of updates:

The former appears to be the service my local health authority referred me to a few months ago (?, to date no Covid Clinics have yet opened in Scotland), the latter just goes to show that even when people who should know better, they don't.

In both cases i am left rolling my eyes and asking what on earth these people are thinking... i get that our day to day practicioners rely on guidelines from more learned people so in no way do i blame them... but my god are some getting Long Covid and how to treat it wrong.

The latter is especially mindboggling, i fought with Long Covid at a time that even i didn't know i was fighting it so how on earth the press could have played a part in what i was going through when no-one even knew that Long Covid existed is beyond me.
The press remained silent on Long Covid until at least November 2020, possibly even later, yes there were murmurs in niche press elements & Forums on the web but the mainstream press (aka newspapers & TV) remained silent.
I suspect i was living with Long Covid from February to August last year (we will never know my real timeline because no tests were available then, later tests that were available were restricted to the hearthcare sector) until one day at work during August 2020 i crashed on a scale i have never experienced before

That "a professor of psychological medicine at the University of Oxford and founder of a long Covid clinic" can claim that what i and countless others have experienced is caused by the press is beyond me and so far off any scale of care or understanding... frankly, he should be struck-off.

In any case, he should hang his head in shame and never speak another word, in fact, he would be well advised to take his pension and retire before he does any more harm.

cf:

Post COVID Rehabilitation
https://apps.nhslothian.scot/refhelp/covid-19/post-covid-rehabilitation#tabs-3|tabs1

Apparently just by talking about it, I’m super-spreading long Covid
https://www.theguardian.com/commentisfree/2021/apr/14/super-spreading-long-covid-professor-press-coverage


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 Post subject: Re: Long Covid.
 Post Posted: Thu Apr 15, 2021 8:17 pm 
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These are probably the most informative articles i've read in months, the former, i've known from first hand experience of all five but it's still good to know that this debate is still happening.

The latter is from a link in the former article, i'm highlighting it because it's important to understand that Long Covid/Long Haul Covid is being studied and all hope should never be given up, whether or not any vaccine helps is an open book... in my case i know the vaccine i recieved (AZ) has helped me, whether or not that remains the case no-one yet knows... but the fact remains that myself and others like me have been given a remission from this dreadful disease and the medical community is now sitting up and asking the question... how is that possible?

I't might be weeks or years before we know the answer to any of this, i am just glad that the right questions appear to be finally being asked.

Scientists haven’t figured out long Covid. Here are 5 of their best hypotheses:
https://www.vox.com/22369734/long-hauler-covid-vaccine

'Long-Haulers' Are Finding Relief After Getting Their COVID-19 Vaccine:
https://www.npr.org/2021/03/30/982805660/long-haulers-are-finding-relief-after-getting-their-covid-19-vaccine


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 Post subject: Re: Long Covid.
 Post Posted: Wed Apr 21, 2021 7:33 pm 
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COVID 'long-haulers' share how they felt better after the vaccine: ‘For the 1st time in a long time, I have hope’
https://www.yahoo.com/lifestyle/covid-long-haulers-share-how-they-felt-better-after-the-vaccine-for-the-first-time-in-a-long-time-i-have-hope-151241889.html

I was going to post this here yesterday but for reasons that ought to be obvious the timing didn't sit well with me so i withheld it until today, i'm still not convinced this is the right time but will there ever be a right time?

My point is, we will know nothing about Long covid until Long Covid is formally recognised, we will equally know nothing about how any vaccine might aid recovery from Long Covid until Long Covid is officially recognised.

Yes, we now have medics telling us that if you suffer from Long covid they too are now seeing respite after having had a vaccine shot, they can talk about that in the press all they want, but until Long Covid is officially recognised that means nothing, until Long Covid is officially recognised papers cannot be presented for peer review.

It's almost as if the medical profession and others are trying to bury their heads in the sand on this, Long Covid, Long Haul Covid, call it what you will and spell it any way you want, the fact remains it has been known to exist since March 2020 when medics, and shortly after, members of the public, started to report it and cry out for help.

FYI, i get that the immediate priority was/is protecting the most vulnerable but Long Covid can affect anyone no matter their age or comorbidities, we have a years worth of knowledge now yet still this life changing 'side effect' is not being taken seriously.

For me, and i don't know if i am unique, it apparently took 6 months from when i suspect i might have been infected by Covid-19 before i crashed(no testing was available during Feb 2020, it was/is also not thought to be in the UK at that time).
All i know is i am certain i caught the virus in 02/2020, my GP and every heathcare professional i've spoken with agrees with me that i likely did... SIX months later i crashed and couldn't work for another 8 months. (It is still to be determined if i can return to work but on Monday i will try).

I just don't understand why cases of infection are being allowed to rise when all the evidence on the ground is that 10-30% of all confirmed cases of Covid-19 infection will result in people suffering from Long Covid.

I lost eight months of my life to Long Covid, i spent months where i was scared i would never wake up to see the next day and still i don't know if my journey is over.

I don't get it, i really don't... but i have hope.


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 Post subject: Re: Long Covid.
 Post Posted: Wed Apr 21, 2021 8:29 pm 
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Another news article i was going to share yesterday but didn't due to obvious reasons...

This one is heavily US related, most of my posts are UK centric so this is something of a deviation for me, you may or may not have read it already...

Slowed and sidelined, some athletes struggle to return from long-haul covid
https://www.washingtonpost.com/sports/2021/04/19/athletes-long-haul-covid-justin-foster/

Quote:
Justin Foster might get the urge to pick up the pace in the grocery store and whisk from aisle to aisle, but his body will force him to slow down. The chest pains will hit. He’ll have difficulty breathing. And before he has purchased his items, Foster either will have to find a seat or leave altogether, unable to complete what was once a simple task.

A little more than a year ago, Foster was a star defensive end at Clemson, terrorizing LSU in the College Football Playoff championship game. And yet 10 months after he tested positive for the coronavirus, menial activities have the potential to level him.

“If you see me walking around, you would think everything is normal. But most of the time, I will be short of breath,” Foster, who has asthma, said in a telephone interview. “I won’t tell anyone. I don’t really try to draw attention or complain about it. I try to deal with it.”

For most, covid-19 is a disease that involves a few weeks of discomfort; for the sick or elderly, it can lead to hospitalization or death. But at 22, Foster is a long-hauler, or a sufferer of “long covid,” one of a small but significant number of covid-19 patients from whom the virus has refused to retreat.

“This absolutely is not a typical viral infection,” said John DiFiori, chief of primary sports medicine and attending physician at New York’s Hospital for Special Surgery. “It’s really difficult to know why certain complications occur in some individuals and not in others, and why certain individuals may take longer to recover in general than others. You can be young and healthy, and you can still struggle with it.”

The article continues...


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 Post subject: Re: Long Covid.
 Post Posted: Thu Mar 17, 2022 11:51 pm 
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People with 'medium COVID' are caught in a gray area of recovery with little support
March 17, 2022 5:00 AM ET
https://www.npr.org/sections/health-shots/2022/03/17/1083040162/long-covid-symptoms

Long Covid suffering is clearly not going away any time soon which is why i wanted to post this, the reporter above believes she was infected by the Omicron variant so it is clearly still happening despite the variant changes.

Make up your own mind to explain why Long Covid is seemingly not being taken seriously by rank and file medics and media, i'm at a total loss to understand why.

I just don't get it. One look at the numbers of those who are still side-lined by Long Covid, or going to be, this is building into a major scandal in years to come in my opinion.


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 Post subject: Re: Long Covid.
 Post Posted: Wed Apr 06, 2022 11:32 pm 
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What follows does not have answers but it does appear to be one of many questions about Long Covid that needs to be answered.

The following paper was published on Dec 28th 2021, so barely four months ago and well after my sleep pattern issues began to become clear... i say 'after my sleep pattern issues began' simply because i now suspect this may have existed as a symptom of mine for much longer but due to so many other health issues caused by Long Covid it's entirely possible i didn't realise this one existed until other Long Covid health issues were resolved.

Disturbances in sleep, circadian rhythms and daytime functioning in relation to coronavirus infection and Long-COVID – A multinational ICOSS study
https://doi.org/10.1111/jsr.13542

The authors of the published paper say this in Section 3: Discussion
Quote:
To the best of our knowledge, there is no other large-scale multinational sleep study targeting the general population regarding the role of sleep and circadian rhythms along with a variety of psychological, biological, social and economic aspects considered in relation to COVID-19 disease infection risk, severity or Long-COVID. Systematic reviews and cohort studies on the frequency and variety of persistent COVID-19 symptoms indicate that sleep problems and disorders, such as sleep difficulties and insomnia, can be high among COVID-19 patients (Lopez-Leon et al., 2021; Nalbandian, Sehgal, & Gupta, 2021). It is, however, unknown whether different sleep, circadian rhythm, daytime functioning and psychological factors have a role in COVID disease risk and prognosis, and the long-term consequences of the infection, or if there are reciprocal relationships between COVID disease prognosis and development of Long-COVID and sleep disorders.

It is plausible that the neurotropic nature of the SARS-CoV-2 infection includes similar peripheral nerve pathways to the central nervous system as Middle East respiratory syndrome (MERS-CoV) and SARS-CoV-1 (Zubair et al., 2020), which also affect sleep, dreaming and daytime functioning (Boldrini et al., 2021; Lam, Wing, & Yu, 2009; Rogers et al., 2021; Zubair et al., 2020). Furthermore, the suggested shared pathways between sleep, dreaming, daytime functioning and SARS-CoV-2 infection leading to Long-COVID can have potential neurodegenerative propensity related to, for example, RBD, parkinsonism and dementia (Brundin, Nath, & Beckham, 2020; Taquet et al., 2021). In a recent polysomnography study, REM sleep without atonia was more prevalent among COVID-19 patients than is usual in general population samples (Heidbreder, Sonnweber, & Stefani, 2021). Furthermore, olfactory impairment is common among patients with RBD (Ross et al., 2008) similarly as among COVID-19 patients (Xydakis, Albers, & Holbrook, 2021).

Historical viral outbreaks affecting neurological functioning before the current COVID-19 pandemic include the Russian flu pandemic in the late 19th century, the Spanish flu pandemic in 1918–1919, and encephalitis lethargica between 1915 and 1926 (Stefano, 2021). Other significant viral infections with cognitive effects are, for example, diphtheria, myalgic encephalomyelitis (post-viral fatigue syndrome; Stefano, 2021), as well as MERS-CoV and SARS-CoV-1 discussed earlier (Boldrini et al., 2021; Lam et al., 2009; Rogers et al., 2021; Zubair et al., 2020). For instance, post-viral fatigue syndrome, which has been shown to follow after many different viral infections (Komaroff & Bateman, 2021), shares similarities to cognitive dysfunction symptoms and fatigue described in Long-COVID (Stefano, 2021). It has also been suggested that Long-COVID is another manifestation of post-viral fatigue syndrome with a new name (Komaroff & Bateman, 2021). Therefore, conducting large-scale collaborative research with a harmonized protocol such as presented here is essential in filling the gap in knowledge in order to delineate the long-term negative consequences related to COVID-19 pandemic...


For those that don't know, i was assigned a 'link worker' by my medical practice (via a GP) in Oct 2021 who was to be a go-between for any healthcare needs i might have relating to Long Covid, so far she has been outstanding and i trust her 100%, she was the one who referred me to an amazing mental health worker (at the [UK] Macmillan Fund for Cancer of all places) for the PTSD i was diagnosed with by my GP due to Long Covid, that therapy i could write a book about on it's own, in fact the therapist wanted me to speak publicly to other healthcare professionals because she was so horrified and amazed at what i've been through!
In time i would like to do that but this has been such a long hard road that more often than not has left me feeling alone and desperate, i'm not ready for that yet, if nothing else i need time, not only to regroup and piece my life back together, but also time to get over the last remaining remnants of this damn evil virus.

Anyway, i forwarded the link above along with more to the link worker over the last week and long story short, I was supposed to get a call from my GP today so we could discuss my findings and what to do next, antihistamines etc have made no difference.

Suffice that the call from my GP didn't happen and i'm yet to find out why... there's probably a good reason why but of all the things i've learnt about Long Covid it's this... everything is baby steps and prepare for Groundhog Day because most days will feel like your repeating yesterday, there is no quick fix.


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 Post subject: Re: Long Covid.
 Post Posted: Wed Apr 20, 2022 10:44 pm 
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welcoming committee
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Joined: Sun Jan 13, 2013 4:13 pm
Posts: 1723
Location: Dunedin, Alba.
I'm not advocating this as a treatment, always consult your medical practitioner, but i didn't see this coming hence why i'm sharing it:

New capsule helps further reduce Covid symptoms
https://www.cuh.nhs.uk/news/new-capsule-helps-further-reduce-covid-symptoms/

The UK Phyto-V Study
http://phyto-v.com/

A Randomised, Double-Blind, Placebo-Controlled Trial Evaluating Concentrated Phytochemical-Rich Nutritional Capsule in Addition to a Probiotic Capsule on Clinical Outcomes among Individuals with COVID-19—The UK Phyto-V Study
https://www.mdpi.com/2673-8112/2/4/31

The UK Phyto-V Study link above probably says it all for the layman, i wanted to include the others so the full facts were available, at first glance i thought it was for Covid infections but it turns out is was aimed at both Covid & Long Covid... and if my reading is correct, more at Long Covid than Covid.

The paper has been peer reviewed and published so i have no reason to doubt it's validity.


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 Post subject: Re: Long Covid.
 Post Posted: Tue May 03, 2022 7:24 pm 
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welcoming committee
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Joined: Sun Jan 13, 2013 4:13 pm
Posts: 1723
Location: Dunedin, Alba.
This is a long read and rich with medical jargon so i'll quote the "Abstract" from the paper, you can then make up your own mind if you want to read the full paper.

Long COVID and neuropsychiatric manifestations (Review)
https://www.spandidos-publications.com/10.3892/etm.2022.11290

Quote:
There is accumulating evidence in the literature indicating that a number of patients with coronavirus disease 2019 (COVID‑19) may experience a range of neuropsychiatric symptoms, persisting or even presenting following the resolution of acute COVID‑19. Among the neuropsychiatric manifestations more frequently associated with ‘long COVID’ are depression, anxiety, post‑traumatic stress disorder, sleep disturbances, fatigue and cognitive deficits, that can potentially be debilitating and negatively affect patients' wellbeing, albeit in the majority of cases symptoms tend to improve over time. Despite variations in results obtained from studies using different methodological approaches to define ‘long COVID’ syndrome, the most widely accepted factors associated with a higher risk of developing neuropsychiatric manifestations include the severity of foregoing COVID‑19, the female sex, the presence of comorbidities, a history of mental health disease and an elevation in the levels of inflammatory markers, albeit further research is required to establish causal associations. To date, the pathophysiological mechanisms implicated in neuropsychiatric manifestations of ‘long COVID’ remain only partially elucidated, while the role of the indirect effects of the COVID‑19 pandemic, such as social isolation and uncertainty concerning social, financial and health recovery post‑COVID, have also been highlighted. Given the alarming effects of ‘long‑COVID’, interdisciplinary cooperation for the early identification of patients who are at a high risk of persistent neuropsychiatric presentations, beyond COVID‑19 recovery, is crucial to ensure that appropriate integrated physical and mental health support is provided, with the aim of mitigating the risks of long‑term disability at a societal and individual level.


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