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 Post subject: Long Covid.
 Post Posted: Fri Aug 21, 2020 4:03 pm 
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Apparently 'Long Covid' is the name being used to describe the long lasting effects of Covid.

This is what the BMJ have to say:

Covid-19: What do we know about “long covid”?
https://www.bmj.com/content/370/bmj.m2815

I was amazed at the search engine results i found by simply typing in "long covid".

I hope the above helps someone else who is struggling with the after effects of this virus.


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 Post subject: Re: Long Covid.
 Post Posted: Fri Aug 21, 2020 4:48 pm 
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Thanks for the link, interesting.

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 Post subject: Re: Long Covid.
 Post Posted: Mon Aug 31, 2020 5:24 pm 
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This is a very interesting watch that i can absolutely relate to!:

How Do You Recover From Long Covid? And How Long Will It Take?
https://youtu.be/QchVvZbMTGE

If you're wondering who he is, he explains at the beginning of the following video, he's not a medic but his videos are reviewed by a medic before publication... plus he's a covid long hauler. (I feel i should warn you that there is some content about the current US President that some may disagree with if you watch the full video.):
https://youtu.be/FULycGPmN18


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 Post subject: Re: Long Covid.
 Post Posted: Tue Sep 01, 2020 5:50 pm 
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I tried.....I really tried to understand all he was saying. But between his accent, his talking speed, and the distracting use of his hands, I was completely worn out after only a few minutes. No doubt he has some good data to share, but IMHO he could have better accomplished this with a written discourse. Just too tiring trying to watch him, even with a bra commercial in the middle of things.

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 Post subject: Re: Long Covid.
 Post Posted: Wed Sep 02, 2020 2:12 pm 
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bbarry wrote:
...even with a bra commercial in the middle of things.

:-o I watched the video from start to finish and didn't see any ads in it all, maybe my adblocker filters ads on YouTube? :dunno:

I'm sorry that you couldn't understand the dialogue and that you found an advert in it... after finding myself in hot water here before i am trying my best not to post things that people could take offence with again.

However, even with the best will in the world the nature of the internet is always going to mean that something somewhere is going to change and/or get past me... especially advertising and its content.

Even though you struggled to understand the content i sincerely hope you understand my intention was only meant to be positive.


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 Post subject: Re: Long Covid.
 Post Posted: Wed Sep 02, 2020 6:26 pm 
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I use AdBlock Plus and I don't get ads in YouTube videos. If I watch on my phone in the app, I get the ads. Recently I did start getting ads before and between videos -- sort of -- with AdBlock Plus... Sort of, because I don't actually see the ad, just a white screen with a button to skip the ads.

I'm sure that your intention was purely positive, Doddie!

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 Post subject: Re: Long Covid.
 Post Posted: Wed Sep 02, 2020 7:26 pm 
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The video may be hard to follow but there was nothing at all with posting. Shoot, even with an ad in it; who cares? Even if strictly text there would, in the majority of cases, be ads on the page. Sadly ads are a big factor of the internet these days.

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 Post subject: Re: Long Covid.
 Post Posted: Thu Sep 03, 2020 1:46 am 
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Doddie wrote:
Even though you struggled to understand the content i sincerely hope you understand my intention was only meant to be positive.

I do understand that, Doddie. And I never meant to be critical of you or the fact that you posted the videos. I was simply stating the fact that the speaker's style of delivery made it difficult for me the grasp all of the content.

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 Post subject: Re: Long Covid.
 Post Posted: Sat Oct 10, 2020 8:17 pm 
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I can't make up my mind how to word this post so i'll just go straight to the lnks, suffice to say that most (if not all) of the content is led by doctors of all levels.

We have heard your message about long covid and we will act, says WHO:
https://blogs.bmj.com/bmj/2020/09/03/we-have-heard-your-message-about-long-covid-and-we-will-act-says-who/

Related to the above link.
LongCovidSOS take part in historical meeting with the WHO:
https://www.longcovidsos.org/post/longcovidsos-take-part-in-historical-meeting-with-the-who

The following worries me most because it was only published last week and if doctors are struggling to get help, what chance does the person on the street have?
Doctors with long COVID:
https://www.bma.org.uk/news-and-opinion/doctors-with-long-covid

In case you don't know:
The BMJ is better known as the British Medical Journal.
The BMA is the British Medical Association, the trade union and professional body for doctors in the UK.
LongCovidSOS is a UK online support/pressure group.


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 Post subject: Re: Long Covid.
 Post Posted: Sat Oct 10, 2020 9:07 pm 
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Interesting links, Doddie. I know that science is just now getting a handle on how to effectively treat COVID to reduce mortality and sometimes speed recovery -- and more is being learned every day. I have to think that the long term symptoms and suffering will indeed be addressed. I hope that it is sooner rather than later for those who are suffering, like yourself.

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 Post subject: Re: Long Covid.
 Post Posted: Sat Oct 10, 2020 10:07 pm 
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Steve, I too like to think that sooner or later 'Long Covid' will be addressed but in the meantime until people who are suffering from it speak out and make those that are not suffering from it aware of the problem the likelihood is that nothing will be done about it.

Officially it's not recognised, by that i mean, the likes of the CDC or the WHO haven't named it, let alone recognised it as a long term consequence of Covid-19.

It's real, it exists, and it's time it was recognised, not least because so many medics are suffering from it and calling it out.


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 Post subject: Re: Long Covid.
 Post Posted: Sat Oct 10, 2020 10:21 pm 
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I'm not 100% sure but believe that the local Veteran's Admin. facility is offering physical therapy for vets that have continuing joint issues from COVID-19.

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 Post subject: Re: Long Covid.
 Post Posted: Mon Oct 19, 2020 7:16 pm 
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The following is a video released by the LongCovidSOS group back in July, i've only just seen it and even though it's a few months old now i think it's still as relevant now as it was then.
https://youtu.be/IIeOoS_A4c8

Fwiw, every question 'asked' in the video, i have asked of myself over the last two months.

@ Jay, Im not sure how i missed your last post in this thread, but i did...
Quote:
I'm not 100% sure but believe that the local Veteran's Admin. facility is offering physical therapy for vets that have continuing joint issues from COVID-19.

I'd be amazed if anyone suffering from Long Covid only suffered from one symptom (e.g. only joint issues), all the evidence so far seems to be that multiple and widely varying symptoms are the most common.

Don't get me wrong, i'd be delighted if your local Veteran facility is correct, any help no matter where it comes from at this time can only be a positive.


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 Post subject: Re: Long Covid.
 Post Posted: Mon Oct 19, 2020 8:34 pm 
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I've been looking for weeks for a 'news' article that might help explain to people outside of Scotland why some care is not yet available to me, that also helps clarify why the NHS in the UK is no longer a unified source of healthcare in the UK.

The following link from Oct 13th, i hope just might do that....

It's from a UK tabloid so may be heavily laden with ads (i use an adblocker so i don't see them), if your not comfortable with ads or don't have an adblocker i suggest you don't click on the link.

Quote:
Do something, Nicola!
Sturgeon urged to act as ‘long COVID’ crisis hits Scotland


SNP ministers have been urged to set up specialist clinics to help the thousands of Scots who are suffering from "long Covid" symptoms. Campaigners said the country was sitting on a timebomb of chronic illness which had to be addressed urgently in order to avoid "utter devastation".

A growing number of people are being left with persistent health problems from coronavirus, including crippling fatigue, breathlessness, joint pain, anxiety and brain fog. The problems can afflict anyone from those who had relatively mild coronavirus infections to those who were treated in intensive care. NHS England last week announced a £10million funding package to set up a network of specialist clinics, with chief executive Sir Simon Stevens saying there were “tens of thousands, probably hundreds of thousands” of people affected.

Today, the Scottish Sunday Express is launching a new campaign to call for similar action north of the Border to help people see the light at the end of the tunnel.

Lesley Macniven, from Edinburgh, fell ill with the virus in March and has battled the symptoms of long Covid ever since...
To read more click on the link below.

https://www.express.co.uk/news/uk/1347217/coronavirus-scotland-long-covid-nicola-sturgeon-SNP

FYI: For those that don't know, the SNP is the Scottish National Party, the political party that holds power in the devolved parliament in Scotland and Nicola Sturgeon is the leader of the SNP.


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 Post subject: Re: Long Covid.
 Post Posted: Mon Oct 19, 2020 8:38 pm 
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Doddie wrote:
Quote:
I'm not 100% sure but believe that the local Veteran's Admin. facility is offering physical therapy for vets that have continuing joint issues from COVID-19.

I'd be amazed if anyone suffering from Long Covid only suffered from one symptom (e.g. only joint issues), all the evidence so far seems to be that multiple and widely varying symptoms are the most common.

Don't get me wrong, i'd be delighted if your local Veteran facility is correct, any help no matter where it comes from at this time can only be a positive.

Oh, The local V.A also offers respirator support including free oxygen systems such as tanks and nebulizers. They also offer free blood pressure cups. Actually I have one of the cups as my blood pressure is always high when I visit the facility but that is just due to the stress of being there as I am not fond of medical facilities. ;) At home, using the cup, I average 125/80 which is pretty decent with my being 66.

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 Post subject: Re: Long Covid.
 Post Posted: Mon Oct 19, 2020 8:57 pm 
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Please take this with the utmost of respect but i have no idea what a blood pressure cup is, or what it does?

In any case, covid or not, i'd be visiting my hospital if i needed a nebulizer or oxygen.

I must be missing something, i know our healthcare systems are close to polar opposites, maybe that's what i'm missing in not understanding your posts?


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 Post subject: Re: Long Covid.
 Post Posted: Mon Oct 19, 2020 9:18 pm 
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jaylach wrote:
At home, using the cup, I average 125/80 which is pretty decent with my being 66.

While on the subject, my systolic blood pressure has consistently been around 135 to 140 for as long as i can remember, not high enough to cause the medics any great concern but high enough for them to offer me statins... i've always resisted going onto statins because according to them i'm borderline, and some of the side effects can be quite nasty.

My last visit to my GP had my blood pressure through the roof at 190/??, my pulse was also elevated to 99bpm, my GP was amazed and insisted that i still still for 10 minutes so she could take another reading... 10 minutes later and the readings were exactly the same.

I was given no explanation, presumably because she had no idea how that was possible either?... i was sent home and told to rest and hydrate... and here we are.


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 Post subject: Re: Long Covid.
 Post Posted: Mon Oct 19, 2020 9:40 pm 
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Doddie wrote:
Please take this with the utmost of respect but i have no idea what a blood pressure cup is, or what it does?


I'm also clueless about what a Blood pressure cup is...

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 Post subject: Re: Long Covid.
 Post Posted: Mon Oct 19, 2020 9:57 pm 
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A blood pressure cup is the thing used to check blood pressure. It is a band that goes around the upper arm and fills with air to constrict.
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 Post subject: Re: Long Covid.
 Post Posted: Mon Oct 19, 2020 10:26 pm 
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jaylach wrote:
A blood pressure cup is the thing used to check blood pressure. It is a band that goes around the upper arm and fills with air to constrict.

Gotcha, in the UK they're typically called Blood Pressure Monitors.

There are varying types but for the most part they're part never called cups, that's what confused me...

cf: From a leading UK leading pharmacy website
https://www.boots.com/health-pharmacy/electrical-health-diagnostics/blood-pressure-monitors


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 Post subject: Re: Long Covid.
 Post Posted: Tue Oct 20, 2020 9:17 am 
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I have one and usually refer to it as a blood pressure cuff. Doctors call it a sphygmomanometer. :mrgreen:

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 Post subject: Re: Long Covid.
 Post Posted: Tue Oct 20, 2020 11:02 am 
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The ones that go around the upper arm are the sort that the nurses tend to use with a bulb shaped part that they keep pumping till it reaches whatever it is that they look at. They have to be calibrated in hospitals so they are accurate.

I have a home monitor that goes around the wrist, it's a Kinetik one, and the monitor sits on the inside of the wrist with bands that go around and fasten with a velcro fastener. It's pretty good and is never that far out from the nurses ones.

The highest reading the nurses got from me was 220/120 in the middle of 2018 and they put me on tablets after that. I think they class it as too high if the top figure goes over 140.

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 Post subject: Re: Long Covid.
 Post Posted: Wed Oct 21, 2020 4:58 pm 
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Some updates today that i thought might be of interest, data and a Government video...:

I've split "1." into two links because i believe 1a (from the horses mouth) is by far the more accurate (albeit more technical, and a preprint); 1b that is spun from 1a is an 'easier read' but i'm not convinced it's good journalism. Make up your own mind.

1a. One in 20 people likely to suffer from ‘Long COVID’, but who are they?
https://covid.joinzoe.com/post/long-covid

1b. Long Covid: Who is more likely to get it?
https://www.bbc.co.uk/news/health-54622059
Quote:
The findings come from an analysis of people entering their symptoms and test results into the Covid Symptom Study app.
Scientists scoured the data for patterns that could predict who would get long-lasting illness.
The results, which are due to be published online, show long Covid can affect anyone, but some things do raise the risk.

Quote:
The study estimates:

One in seven people is ill for at least four weeks
One in 20 people is ill for at least eight weeks
One in 45 people is ill for at least 12 weeks


2. The UK Government today published a video aimed at raising awareness of Long Covid symptoms:
https://youtu.be/ulJSEo2fWvA


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 Post subject: Re: Long Covid.
 Post Posted: Wed Oct 21, 2020 6:24 pm 
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I was reading a similar article published by the New York Times earlier today.

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 Post subject: Re: Long Covid.
 Post Posted: Wed Oct 21, 2020 7:06 pm 
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jaylach wrote:
I was reading a similar article published by the New York Times earlier today.

Curious, do you have a link?

Btw, when i started this thread it didn't appear to be a topic of discussion in the US so if you want to rename this thread to include something more US specific (e.g. Long Haul, or Long Hauler?) then i would have no problem with that.

The wider the discussion/audience the more pressure it puts on the health authorities to officially recognise it.


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